Edmund Jessop

Edmund Jessop trained in public health and has worked for the National Health Service in England for the past 30 years.

Since 2002, Edmund has been medical adviser to the National Commissioning Group which plans, funds and monitors services for patients with very rare disease. This has included decision making on the so-called ‘ultra-orphan’ drugs as well as other very specialised technologies.

He is also a Fellow of the UK Faculty of Public Health and has taught courses on public health including health economics and health technology assessment for over 15 years.

Edmund was a member of the Rare Disease Task Force and has been nominated as the UK representative to the new EU Committee of Experts on Rare Disease (EUCERD).

www.nhs.uk

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases