Fabrizia Bignami

Fabrizia Bignami holds a PhD in Cellular and Developmental Biology from the Department of Cellular Biology at La Sapienza University-Rome, Italy. She has also completed a postdoctoral fellowship at the CNRS Laboratory for Cellular Biology of Membranes, Jacques Monod Institute-Paris, France.

Fabrizia was trained in in Statistics Applied to Medicine (CESAM), Université Paris-VI, and Health Technology Assessment at the UMIT, Tyrol Austria.

Between 2000 and 2002, she was Project Manager for Cell Therapies at the Scientific Department of the French Association against Myopathies (Association Française contre les Myopathies, AFM-Téléthon), France.

In 2002, Fabriziabecame Therapeutic Development Director at EURORDIS, Paris, France, in charge of all activities relating to research and development of medicinal products for rare diseases in Europe.

In particular, she was permanent observer and patient representatives’ supporter at the Committee for Orphan Medicinal Products (COMP), EMA from 2002 to 2009 as in 2009 she was nominated member of the Committee for Advanced Therapies (CAT), EMA.

www.eurordis.org

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases