François Houÿez

  • Information & Access to Therapies Director & Health Policy Advisor

François Houÿez has worked as a patient advocate since the early 90s and joined EURORDIS in May 2003. He now works as Information & Access to Therapies Director & Health Policy Advisor.

He represents EURORDIS at the Patients’ and Consumers’ Working Party at the European Medicines Agency (EMA) and has been appointed external expert for the evaluation of marketing authorisation applications. He co-chairs the stakeholders’ forum of the EUnetHTA Joint Action.

He pioneered patient advocacy with the European Medicines Agency as part of the first patients’ delegation that engaged dialogue with the Agency back in 1996 and has continuously been involved in the agency activities during the last 26 years.

He has worked both as a volunteer and as an employee for a variety of patients’ organisations at national and international levels.

Please contact him if you have issues regarding access to care (medicines, medical devices, surgery, cross-border care...) as he is leading the EURORDIS Access Campaign.

François speaks French, English and some German.

François is also a patient.

Telephone: +33 1 56 53 52 18
Email: francois.houyez@eurordis.org

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases