Julien Delaye

  • Public Health Policy Junior Manager

Anna_Kole

Julien Delaye joined EURORDIS in September 2019 for an internship and worked on the Rare 2030 project. He is now Public Health Policy Junior Manager, based in Brussels.

Prior to EURORDIS, he worked as an event coordinator for European Calcified Tissue Society (ECTS), was a volunteer for Osteogenesis Imperfecta Federation Europe (OIFE) and did a marketing internship at Sanofi - Copenhagen.

Julien holds two bachelor’s degrees, in Marketing (Liège – Campus Guillemins) and in European Public Health (Maastricht University), and a master’s degree in Public Policy and Administration (Dublin – UCD). Throughout his studies, he focused his academic work, papers and theses on rare diseases. His master’s thesis investigated the notion of significant benefit and compared the American and European legislative approaches.

Julien speaks French, English and a bit of Dutch.

Email: julien.delaye@eurordis.org

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases