Maria Mavris

Maria Mavris PhotoMaria Mavris joined EURORDIS in 2008 in the capacity of Drug Development Programme Manager and from 2012 to 2014 as Director of Therapeutic Development. Since September 2014, she is on secondment to the European Medicines Agency (EMA). Sharing her experience gained over her six years with EURORDIS, she now strives to improve the quality of work and communication with stakeholders in the Agency’s new department dedicated to the interaction with patients and healthcare professionals.

Maria was previously EURORDIS observer on the Committee for Orphan Medicinal Products at the EMA. She was also responsible for coordinating the group of high-level EURORDIS representatives/volunteers who sit on the various scientific committees at EMA, known as the Therapeutic Action Group (TAG). 

Maria was also implicated in activities of the Scientific Advice Working Party (SAWP) where she was responsible for the identification of patients’ representatives to participate in Protocol Assistance and had a supportive role for EURORDIS representatives in the Patients’ and Consumers’ Working Party. Her current role in the EMA continues and expands on these activities from the EMA perspective. 

In order to train and support patients’ representatives in regulatory activities, she also coorganised the EURORDIS Summer School. After obtaining a PhD in Molecular Microbiology from The University of Adelaide, Australia, she continued her postdoctoral studies at the Institut Pasteur, Paris and the Ecole Veterinaire in Maison-Alfort. After this time, she worked as a medical writer in a Contract Research Organisation specialising in oncology.

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases