Michael Wilbur

  • Chief Operating Officer

Michael WILBUR

Michael joined EURORDIS in March 2019 as Chief Operating Officer, based in the Paris office.

As COO he is responsible for the oversight, support, coordination, development and scale–up of EURORDIS Operations, Programmes and Projects covering the following areas: research infrastructures and clinical research; therapeutic development, information and access to medicines; healthcare and European Reference Networks; social services and integrated care; online patient communities and social media; patient advocates’ capacity building; information and communication; and resource development. His role is to ensure that these activities are strategically meaningful, impactful and cost-effective; positioned within the mission, values and strategy of EURORDIS and involving the right partners and stakeholders.

Before joining EURORDIS, Michael worked in Patient Safety for NHS England/NHS Improvement and the NHS National Patient Safety Agency in the United Kingdom.

Michael holds a Master’s degree from King’s College London and BA from Boston College.

Telephone: +33 1 56 53 52 67
Email: michael.wilbur@eurordis.org

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases