Julia Saperia

Following an undergraduate degree in mathematics from the University of Bristol, Julia Saperia obtained a Master’s degree in Statistics with Applications in Medicine from the University of Southampton in 2003.

After 3 years working as a medical statistician in academia (Southampton and London), she moved to the National Collaborating Centre for Women's and Children's Health (UK).

While there she was a systematic reviewer and project manager, principally writing clinical guidelines on behalf of the National Institute for Health and Clinical Excellence. Her work led her to in collaborate closely with committees of medical experts, and patient and carer representatives.

In September 2009 she joined the European Medicines Agency where she works as a medical statistician supporting the work of the paediatric medicines team and the Paediatric Committee (PDCO).

www.ema.europa.eu

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases