Nathalie Bere

Nathalie Bere PhotoNathalie Bere obtained a first degree in Psychology (BSc) followed by a Master’s degree in Public Health (MSc). Nathalie has been working at the European Medicines Agency (EMA) for over 16 years and is currently responsible for the interaction and involvement of patients and consumers in EMA activities.

Since January 2009, Nathalie has been dedicated to supporting the Agency’s engagement with patients and consumers via a network of over 37 European patients and consumers organisations, including management of the Agency’s “Patients and Consumers Working Party” (PCWP). Her work involves not only the daily interactions with patients, but also developing and monitoring the scope of involvement of these stakeholders within the various Agency activities, such as participation in scientific advisory groups, committee consultations and the review of medicines information for patients.

During the past few years there has been a significant increase in patient participation and Nathalie iscommitted to further strengthening this involvement, with particular emphasis on ensuring adequate training and support is given to those who participate.

 

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A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases