Stanislav Ostapenko

  • Communications Manager

Stanislav Ostapenko joined EURORDIS in 2021 as Communications Manager.

Stanislav writes all public communications for EURORDIS-Rare Diseases Europe and oversees weekly operations for communications activities, ensuring that content made public across EURORDIS newsletters, websites, press releases and social media is fully accurate, timely and highly professional.

Prior to joining EURORDIS, Stanislav worked for two years at UNESCO as a Communications Consultant, specialized in human rights, ethics of AI, and social and human sciences. He also worked at the OSCE ODIHR in Warsaw and American Councils in Kyiv, where he created and delivered communication plans and ensured communications support for various events.

Stanislav holds a Master’s degree in European Public Affairs and Policy from the College of Europe.

Stanislav speaks English, French, Russian and Ukrainian.

Telephone: +33 1 56 53 52 61
Email: stanislav.ostapenko@eurordis.org

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases