10th Workshop, Barcelona: “EURORDIS Strategy 2010-2015 and Partnership with the ERTC Members”

10th Workshop of the Eurordis Round Table of Companies:

“EURORDIS Strategy 2010-2015 and Partnership with the ERTC Members”

 

June 19th, 2009

Barcelona, Spain

To mark the 10th anniversary of the ERTC Workshops, this meeting focussed on the EURORDIS’ vision for the future, a vision shared by the US National Organisation for Rare Disorders (NORD) with whom a close collaboration is being implemented to coordinate efforts at a global level. This strategy will benefit the development of orphan drugs and will have a direct positive impact on the lives of patients living with a rare disease, in the two continents and beyond. This workshop was also the opportunity to take stock of five years of fruitful partnership with the pharmaceutical companies supporting EURORDIS via the ERTC.

Participants: 50

Key feature: for the first time, participation from Peter Saltonstall, the newly appointed CEO of NORD, symbolised the start of an official collaboration between the two rare disease organisations. In the afternoon, the breakout sessions facilitated discussions on ways for industry of collaborating with EURORDIS on different specific actions.

Programme

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases