13th Workshop, Paris: "Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

13th Workshop of the Eurordis Round Table of Companies:

"Patients' Access to OMPs, Innovative Pricing Schemes and National Measures in a Global Financial and Economic Crisis Environment"

 

December 13th, 2010

Paris, France

13th ERTC Workshop ParisAttracting a larger audience than usual, the topic of this workshop was timely in a global financial and economic crisis environment, with additional pressure on national healthcare budgets. In a context of promotion of national plans and strategies on rare diseases in all the European Member States, the development of new and more appropriate measures to improve access to Orphan Medicinal Products has become a priority.

During this workshop, the results of two surveys on patient access to orphan drugs were presented and the crucial need for an early dialogue and a coordinated EU approach were discussed, to aid patients’ access to Orphan Medicinal Products.

 

Participants: 86

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases