16th Workshop, Brussels: "The Value of Partnering in Rare Disease Therapies"

16th Workshop of the EURORDIS Round Table of Companies

“The value of partnering in RD therapies:
Benefits of working with patients along the treatment lifecycle in the areas of clinical trials, regulatory affairs and health technology assessment“

 

March 1st  2012

Brussels, Belgium

ERTC Workshop 16Held for the first time in the Belgian capital, this workshop explored the benefits of working with patients along the treatment lifecycle in the areas of clinical trials, regulatory affairs and health technology assessment. The need for patients to be empowered and therefore trained was emphasised and the EURORDIS Summer School and EUPATI project were described.

Participants: 72
 

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases