18th Workshop, Brussels: "Corporate Responsibility in Improving Access to Orphan Medicinal Products"

18th Workshop of the EURORDIS Round Table of Companies

Corporate Responsibility in Improving Access to Orphan Medicinal Products

 

February 27th, 2013

Brussels, Belgium

This Workshop focused on Corporate Responsibility in the context of the current economic situation across Europe, taking into consideration the national plans for rare diseases that EU Member States are urged to develop by the end of 2013. Bringing together more than 80 participants from 11 countries in the European Union, the USA and Canada, the workshop featured the participation of Thomas Heynisch, (European Commission, DG Enterprise), Johan van Calster, (former Head of Belgian Medicines Agency), Richard Bergström  (Director General, European Federation of Pharmaceutical Industry Association) and other stakeholders. The daylong event moved forward understanding of the complex issues involved in the process of fostering more equitable and rapid medicinal product access for people living with a rare disease across Europe.

Participants: 80

Programme 

Concept Paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases