3rd Workshop, Barcelona: “Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”

3rd Workshop of the Eurordis Round Table of Companies:

“Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”

 

November 21st, 2005

Barcelona, Spain

participants discussing among themselvesAn advanced draft of the EURORDIS Charter for Clinical Trials in Rare Diseases was presented to the ERTC members who attended this workshop and a consultation phase was launched for all the ERTC members, which lasted a few months. They were asked to help EURORDIS to prepare the most useful and appropriate document to help sponsors to conduct their studies with direct collaboration and involvement of rare disease patients' organisations.

Participants: 56

Key feature: first presentation of the draft EURORDIS Charter for rare disease clinical trials

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases