ECRD 2020 Executive Summary

For the first time ever, the European Conference on Rare Diseases & Orphan Products 2020 was a fully virtual event.

An unprecedented success, 1,500+ people from 57 countries registered to attend ECRD online. 

At a moment in history when people have experienced strong feelings of isolation, the event offered a timely opportunity for conference participants to come together and connect online with members of the rare disease community around the world.

Based on the work carried out through the ongoing Rare2030 Foresight Study, ECRD brought together patient advocates, industry representatives, regulators and healthcare professionals to discuss how to build a better future for people living with a rare disease.

Through a custom-built platform, participants were able to attend from the safety of their own homes and participate in 29 sessions with 100+ speakers, chat with fellow attendees and participate in ‘meet the speaker’ sessions.

A huge thank you to ECRD attendees for joining, contributing to such high quality and productive discussions, and for sharing positive feedback of their ECRD 2020 online experience.

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases