Eurordis - Rare Disease Europe

Sobre nós

• Our History

• Who we are

• Staff

• Nossa Estratégia e Impacto

Como operamos

• Our Funding

Nossa rede

• Members

• European or international federations for rare diseases

Áreas prioritárias

• Políticas para as Doenças Raras

• Investigação

• Diagnóstico

• Redes Europeias de Referência

• Treatments

• Cuidados Holísticos

Obter informação

• What is a rare disease?

• Find Information on Treatments

• Compassionate use

• Pharmacovigilance

• Rare disease personal stories

• Rare diseases in the arts

Trova supporto

• Find a patient organisation

• Rare disease helplines

• Find a specialised Social Service

• Find medical expertise

• Find a community

Com EURORDIS

• Join the EURORDIS Round Table of Companies

• ERTC Recursos

• Apoio EURORDIS

Com nossos programas e iniciativas

• Rare Barometer

• EURORDIS Open Academy

• Rare Disease Day

• Find a community

• EURORDIS Community Advisory Board Programme