3rd Workshop, Barcelona: “Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”

3rd Workshop of the Eurordis Round Table of Companies:

“Rare Disease Clinical Trials: Ensuring Fruitful Collaborations between Sponsors & Patient Organisations”

 

November 21st, 2005

Barcelona, Spain

participants discussing among themselvesAn advanced draft of the EURORDIS Charter for Clinical Trials in Rare Diseases was presented to the ERTC members who attended this workshop and a consultation phase was launched for all the ERTC members, which lasted a few months. They were asked to help EURORDIS to prepare the most useful and appropriate document to help sponsors to conduct their studies with direct collaboration and involvement of rare disease patients' organisations.

Participants: 56

Key feature: first presentation of the draft EURORDIS Charter for rare disease clinical trials

Programme

Concept Paper

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases