Eurordis: A Brief Presentation



Eurordis’ mission, main activities and achievements are detailed in this leaflet, as well as the European institutions and platforms in which Eurordis has an involvement, and a listing of some of the many rare diseases represented by the organisation. This double-sided folded leaflet is available in print format only.



To order printed copies, read more >
Languages: English





This 2-page pamphlet gives an overview of Eurordis’ mission, priority areas of action, achievements and key facts and figures.


Languages: See also the French, Spanish, German, Italian or Portuguese sections of our website for translations in those languages.



The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases