Eurordis Charter for Clinical Trials in Rare Diseases

A charter for collaboration between the various stakeholders (sponsors, patient organisations, patients and investigators) involved in clinical trials for rare diseases has been developed by Eurordis through consultation. The aim of the charter is to improve the quality of clinical research in rare diseases and to ensure a transparent and effective dialogue between interested parties.


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Languages: English

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases