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March 2010

Programme: European Workshop on Rare Disease Research


A European Workshop on Rare Disease Research organised by EURORDIS was held on March 1st at the International Press Centre in Brussels. Throughout the day, prestigious speakers, panellists and discussants made the case for RD research to be included in public funding schemes and remain high in the European research agenda.

The event which was co-organised with E-RARE in partnership with the European Commission, Orphanet and EuroPlan, attracted over 100 participants from European and national research authorities, patient organisations, industry, as well as researchers and the media.

In line with this year’s Rare Disease Day focus on  “bridging patients and researchers”, the Workshop was successful at identifying the future priorities in rare disease research and defining concrete steps to ensure a better collaboration of all interested parties