Video tutorials on how to find quality information on the internet

These video tutorials are aimed at building your capacity to use online databases such as PubMed, learn advanced techniques for searching Google, how to stay up to date and how to evaluate the quality of information online.


How to optimise your Internet search with Google

Learn basic and advanced tips for using Google to search for rare disease information


Searching databases for rare disease information

Learn how to use some of the many online databases which may help you identify relevant information


PubMed, a bibliographic database

Learn how to search the largest biomedical library in the world for information related to your research area or rare disease


Staying up to date on rare disease information

Learn how to bring current information to you using tools such as Google News, RSS feeds or alerts from PubMed


Evaluating health information on the Internet

Learn how to evaluate the quality of information sources online


Web 2.0 and rare diseases

Learn how social networks have changed the lives of people living with a rare disease

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases