Cookie Policy

The Website is operated by European Organisation for Rare Diseases, a non-governmental organisation, with its registered office at Plateforme Maladies Rares, rue Didot 96, 75014 Paris and registered in France  under the company number 413 459 066 000 36 ("Eurordis", "We", "Us" or "Our").

The present Cookie Policy applies to the website ("Website") and explains which cookies are used by Us on the Website. By visiting and using the Website, you expressly agree to the use of cookies as described in this Cookie Policy. If you do not agree to this Cookie Policy, please leave the Website immediately.

We use cookies in the context of Our privacy protection and personal data processing policy. Please consult the Privacy Policy for more information about this policy and an overview of your rights in this regard.

You will find a description of the conditions for your use of the Website in the Conditions of Use.

1. What are cookies

 Cookies are small data files that a website server permanently or temporarily stores on your computer through your browser. Cookies contain a unique code that allows Us to recognise your browser during your visit (a so-called "session" cookie) or when you visit or use the Website at a later time (a so-called "permanent" cookie).

Cookies allow Us to simplify, complete and personalize the use of the Website.

2. Use of cookies

 The Website use cookies to distinguish you from other Users of the Website. Cookies are used to ensure that We give you the best experience on the Website and allow Us to improve the Website. The Website uses the following types of cookies:

2.1. Necessary cookies

 These cookies are necessary for the operation of the Website and enable you to move around the Website and use its features. They allow you, for instance, to navigate between different sections of the Website or to complete forms. When you want to use your user name to log in to the Website, cookies are also necessary for secure validation of your identity before you are granted access to your data, and to prevent other users from accessing your data. If you refuse these cookies, certain parts of the Website will not work or will not work correctly.

2.2. Functional cookies

 Functional cookies facilitate and enhance navigation on the Website and enable Us to provide a more personalized user experience. They include cookies that save your language preferences, as well as cookies that remember if you have already downloaded certain documents, so you do not receive the same document every time.         

2.3. Performance cookies

These cookies are used to collect information about how visitors use the Website, such as information about page visits or the number of error messages displayed, in order to analyze and optimize the use of the website.

In this regard, cookies to support the use of Google Analytics and Facebook’s Social Plugin have been installed. For an overview of Google and Facebook’s respective privacy policies, we refer to the website of Google and Facebook .

3. Managing cookies

 You can use your browser settings to refuse the installation of cookies. You can also delete installed cookies from your computer or mobile devices at any time.

Once you have given Us your consent to the use of cookies, We will store a cookie on your computer or device to remember this for the next time. If you wish to withdraw your consent at any time, you will need to delete your cookies using your internet browser settings.

More information on the use of cookies can be found on the website or you may always contact Us at Eurordis, Rue Didot 96, 75014 Paris, France or .

4. Changes

We reserve the right to amend the present Cookie Policy at any time. You are responsible for reading the applicable Cookie Policy on a regular basis and for complying with the latest version.

This Cookie Policy was last modified and revised on 4 November 2015.

Page created: 04/11/2015
Page last updated: 04/11/2015
Голос пациентов с редкими заболеваниями в Европе The voice of rare disease patients in EuropeEURORDIS Сеть организаций, представляющих интересы пациентов с редкими заболеваниями их разных стран мираRare Disease International Социальная сеть RareConnect предоставляет пациентам, их семьям и специалистам многоязычную платформу для обмена информацией и опытом RareConnect Программа Rare Barometer — это инициатива EURORDIS, направленная на проведение исследований по преобразованию опыта пациентов с редкими заболеваниями в цифры и факты, которыми можно поделиться с ответственными руководителями. Rare Barometer День больных редкими заболеваниями – международная кампания по привлечению внимания к проблеме редких заболеваний, которая по инициативе EURORDIS ежегодно проводится в последний день февраляRare Disease Day Приняв участие в Европейской конференции по редким заболеваниям и орфанным препаратам (EUCERD), которая по инициативе EURORDIS проводится каждые два года, вы получите возможность побывать на самом представительном европейском форуме по проблемам редких заболеваний.European Conference on Rare Diseases