Join the ERTC

The EURORDIS Round Table of Companies (ERTC) fosters an educational relationship and a constructive dialogue between EURORDIS and companies addressing rare diseases.

Since its inception 20 years ago, EURORDIS has gained expertise in dealing with the various public and private institutions involved in the rare disease and orphan drug fields. Through the ERTC programme, EURORDIS shares this expertise by bringing together industry, patient advocates, public officials and other experts to address patient needs. Discussions mainly take place at two ERTC workshops.

Pharmaceutical companies interested in rare diseases are confronted with very specific hurdles that lie in the path of product development for rare diseases in Europe. These are not the same as in the US where a specific rare disease policy has existed since 1983. The multicultural and heterogeneous legislative environment in the EU adds to the difficulty for orphan drug developers.

EURORDIS is fully aware of the bottlenecks and obstacles in developing products for rare diseases in Europe. In addition to being one of the main promoters of the EU Orphan Drug Regulation, we are a member of the COMP (Committee of Orphan Medicinal Products) and actively involved in the designation procedure of orphan medicinal products at the EMA (European Medicines Agency).

Membership benefits

  • Participation in 2 Round Table of Companies' Workshops per year focusing on issues suggested by the members. These workshops aim to accelerate the development as well as availability of treatments and health services in Europe. They also seek to build relationships with the patient community in a collaborative atmosphere that facilitates discussion (More information about ERTC workshops).
  • Opportunities to interact with other companies in a neutral venue
  • Opportunities for direct exchange of views with leaders of the rare disease community
  • Opportunities to develop partnerships and collaborations with patient groups 
  • Mention of ERTC members on EURORDIS ' website (see Members of the Round Table of Companies), with a logo and a direct link to the websites of the companies
  • Financial support acknowledged in the annual report
  • Timely reports, surveys and analysis relevant to the field of orphan drugs and rare diseases from different sources (EURORDIS, NORD, EMA, FDA, European Commission, EFPIA/EBE/EuropaBio, academic researchers).

 

Ruby member - 25 000 €

  • Up to 5 participants to workshops
  • Company listed on EURORDIS' website with logo and a link to the company's website
  • Financial support acknowledged in annual report

 

Emerald member - 10 000 €

  • Up to 2 participants to workshops
  • Company listed on EURORDIS' website with logo and a link to the company's website
  • Financial support acknowledged in annual report

 

Sapphire member - 5 000 €

  • 1 participant per workshop
  • Company listed on EURORDIS' website with logo and a link to company website
  • Financial support acknowledged in annual report

 

Round Table Membership

Membership application

For more information on applying for ERTC Membership, please contact:
Ms. Anne-Mary Bodin
Operations Unit Assistant
anne-mary.bodin@eurordis.org

We look forward to welcoming you to the EURORDIS Round Table of Companies.

The EURORDIS Round Table of Companies
EURORDIS
Plateforme Maladies Rares
96, rue Didot
75014 PARIS
FRANCE
Tel: + 33 (0)1 56 53 52 10


Page created: 19/08/2009
Page last updated: 11/09/2018
 
 
Голос пациентов с редкими заболеваниями в Европе The voice of rare disease patients in EuropeEURORDIS Сеть организаций, представляющих интересы пациентов с редкими заболеваниями их разных стран мираRare Disease International Социальная сеть RareConnect предоставляет пациентам, их семьям и специалистам многоязычную платформу для обмена информацией и опытом RareConnect Программа Rare Barometer — это инициатива EURORDIS, направленная на проведение исследований по преобразованию опыта пациентов с редкими заболеваниями в цифры и факты, которыми можно поделиться с ответственными руководителями. Rare Barometer День больных редкими заболеваниями – международная кампания по привлечению внимания к проблеме редких заболеваний, которая по инициативе EURORDIS ежегодно проводится в последний день февраляRare Disease Day Приняв участие в Европейской конференции по редким заболеваниям и орфанным препаратам (EUCERD), которая по инициативе EURORDIS проводится каждые два года, вы получите возможность побывать на самом представительном европейском форуме по проблемам редких заболеваний.European Conference on Rare Diseases