Simone Boselli

  • Public Affairs Director

Simone Boselli

Simone Boselli joined EURORDIS in April 2017 as a Public Affairs Director.  

A member of the European and International Advocacy team, Simone contributes to European policy development and specifically represents EURORDIS in policy discussions on access to therapies, with a focus on reducing delays and inequalities, on the underlying challenges in the field of the value assessment, pricing and reimbursement of orphan medicines, and on current initiatives towards improved access (e.g. MoCA). He has contributed to the finalisation of the paper on 'Breaking the Access Deadlock to Leave No One Behind' and is engaged in finding new policy solutions for improving access to innovative therapies for people with rare diseases.

With a view to advance rare diseases as a public health priority at a global level, Simone also supports advocacy activities at Rare Diseases International and the further development of NGO Committee for Rare Diseases.

Simone brings to EURORDIS over ten years of experience in the European public affairs arena, having previously worked for two leading consultancies in Brussels and specialised in health advocacy and government affairs in particular. He has in-depth expertise in healthcare having devised and implemented advocacy campaigns at EU and national level on a range of global health issues from sustainable health systems, chronic diseases, healthy ageing to mental health, neurodegenerative diseases, malaria, TB and hepatitis C.

Simone graduated in Sciences of Communications at the University of Bologna and holds a post-graduate certificate in European Public Relations and Project Management from the Italian Institute of Commerce in Brussels.

Simone speaks Italian, English and French, and has a working knowledge of Spanish. 

Telephone: +32 2 274 06 13
Email: simone.boselli@eurordis.org

 
 
Голос пациентов с редкими заболеваниями в Европе The voice of rare disease patients in EuropeEURORDIS Сеть организаций, представляющих интересы пациентов с редкими заболеваниями их разных стран мираRare Disease International Социальная сеть RareConnect предоставляет пациентам, их семьям и специалистам многоязычную платформу для обмена информацией и опытом RareConnect Программа Rare Barometer — это инициатива EURORDIS, направленная на проведение исследований по преобразованию опыта пациентов с редкими заболеваниями в цифры и факты, которыми можно поделиться с ответственными руководителями. Rare Barometer День больных редкими заболеваниями – международная кампания по привлечению внимания к проблеме редких заболеваний, которая по инициативе EURORDIS ежегодно проводится в последний день февраляRare Disease Day Приняв участие в Европейской конференции по редким заболеваниям и орфанным препаратам (EUCERD), которая по инициативе EURORDIS проводится каждые два года, вы получите возможность побывать на самом представительном европейском форуме по проблемам редких заболеваний.European Conference on Rare Diseases