- About EURORDIS
- About Rare Diseases
- Rare Disease Policy
- Orphan Drugs & Treatments
- What is an orphan drug?
- Improve the safety of your medicines
- Compassionate Use
- Role of EURORDIS
- Patient advocates involvement
- Access to orphan drugs
- Health technology assessment
- EURORDIS Round Table of Companies (ERTC)
- List of the latest marketing authorisations and orphan medicinal products designations
- Living with a Rare Disease
- Services & Trainings
- Get involved
- News & Events
The EUROPLAN Project
The EUROPLAN project, co-funded by the European Commission, is designed to support the efforts of national authorities to develop public health strategies on rare diseases throughout Europe following common guidelines. National conferences, aimed at promoting rare disease plans, are organised in European countries.
The success of the first set of 15 EUROPLAN conferences (2010-2011) has led to further continue this project within the EUCERD Joint Action (2012-2015), in order to help achieve the objective set in the Council Recommendation: implementing plans on rare diseases in each EU country by the end of 2013.
Synthesis report and national reports
Learn about the outcomes of each EUROPLAN National Conference held in 2010 and 2011.
EUROPLAN Flickr Gallery
Discover the pictures of the EUROPLAN national conferences aimed at promoting a national plan for rare diseases (Flickr Gallery).
Find out the latest news from the rare disease community! We comply with the HONcode standard for health trustworthy information
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This website received funding under an operating grant from the European Union’s Health Programme (2014-2020)
The voice of rare disease patients in Europe
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative
The international voice of people living with rare diseases
Bringing together patients, families and experts to share experiences in a moderated multi-language forum.
The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.
An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiative
Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiative