Ethics in medicine development is built on several  pillars of good ethical practice that have come about because of the horrors of human rights violations during both war and peace time including genocides, experiments  on humans as well as modern transplant surgery.  In this section you can learn more about how ethics not only encompasses medicine, but also how it now an integral part of how medical research and development should be conducted.



In this section you can view webcasts from the EURORDIS Summer School covering ethical aspects in clinical trials and an overview of the evolving role of ethics in medicines development



Slide presentations on ethical issues in medicines development can be viewed and downloaded in .pdf format in this section


Interactive training module

To learn more and test your knowledge on ethics in medicines development, you can use this interactive training module that covers topics such as informed consent, justice and the role of ethics committees.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases