Webcasts on Ethical Issues in medical research and development

In this section you can view webcasts from the EURORDIS Summer School covering ethical aspects in clinical trials and an overview of the evolving role of ethics in medicines development


Ethical Aspects of Clinical Trials

A slideshow presentation on the history of involving humans in medical research and where we stand today with laws and declarations protecting human research participants.


Ethical Aspects from a US Perspective

A slideshow presentation on the United States' biomedical ethics history and current regulations and processes.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases