Interactive training modules

To learn more and test your knowledge on medical research and development, you can use these interactive training modules that cover topics such as clinical trial study design and the use of statistics in clinical trials


Module 1 - Methodology

This course explains aspects from study design to choice of endpoints and result analysis.


Module 3 - Statistics

The module on Statistics complements the current e-learning tool developed to improve patient’s understanding of the drug development process.


Comet Initiative Webinar

The Core Outcome Measures in Effectiveness Trials webinar to introduce patient advocates to the COMET Initiative on harmonising outcome sets in clinical research.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases