Slide presentations medical research and development

This section contains slide presentations from the EURORDIS Summer School covering medical research topics.

 

Review of Key Concepts in Clinical Trial Methodology

A slideshow presentation on the basics of medical research, clinical drug development, and therapeutic drug development revised in 2017

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What to consider when developing therapies

A slideshow presentation on the development of one drug for Duchenne Muscular Dystrophy and what we’ve learned from it.

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How medical research develops into clinical drugs

A slideshow presentation on the basics of medical research, clinical drug development, and therapeutic drug development.

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When and why to do Clinical Research

A slideshow presentation on the basics of medical research, defining evidence-based medicine and its risks, and the life-cycle of drug development.

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Introductory statistics for medical research

A slideshow presentation on medical statistics, how to interpret them and what statistical error means in real life.

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EURORDIS’ Role in Clinical Trials for Rare Diseases

A slideshow presentation on EURORDIS’ charter, proposed to and accepted by several scientific sponsors in an effort to regulate and improve patient organizations’ involvement in clinical developments.

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases