The EURORDIS Black Pearl Awards 2024August 2023
The EURORDIS Black Pearl Awards are an annual event organised by EURORDIS to recognise and celebrate the exceptional achievements and outstanding work of individuals, organisations, and companies in the field of rare diseases.
The awards were established in 2012 and are named after the black pearl, a symbol of rarity. They aim to raise awareness about rare diseases and highlight the significant contributions of the awardees to the rare disease community.
The official Awards Ceremony, which takes place over one evening, typically the third week of February, marks the occasion of Rare Disease Day. Rare Disease Day is an international awareness-raising campaign for rare diseases, led by EURORDIS. Every February, thousands of events take place in over 90 countries and regions, uniting millions of people living with a rare disease worldwide.