Taking place in February, which also marks the occasion of Rare Disease Day, our annual EURORDIS Black Pearl Awards celebrate the outstanding achievements of people living with a rare disease, along with those who go that extra mile to make a difference to their lives.
The awards celebrate hard work, innovative thinking and dedication to the rare disease community.
Since 2012, EURORDIS-Rare Diseases Europe has organised this event to recognise the major achievements made for and by the rare disease community, and the commitment of patient advocates, patient organisations, policymakers, scientists, companies, and others.
As of February 2023, the awards have become a full hybrid event, allowing people from across our community to attend the in-person ceremony and gala dinner in Brussels, or to connect online from anywhere in the world. This unique evening offers a blend of celebration, learning, sharing experiences, and stunning artistic performances!