EURORDIS Events

In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

April 2021

CNA workshop

29 April 2021, online

Closed event for CNA members only. For more information, please contact Anja Helm.


May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

MM_2021.jpgOnline.

EURORDIS represents 962 rare disease patient organisations in 73 countries. EURORDIS Membership Meeting is an excellent opportunity for patient organisations to meet other patient advocates, learn from the best in the rare disease community, and get exposed to the latest developments in rare disease advocacy.

Learn more here.

 


June 2021

EURORDIS General Assembly

10 June 2021

GA_2021.jpgOnline. This is a closed event for EURORDIS members.

Each year, EURORDIS holds the General Assembly, which serves as an opportunity to get a full view of EURORDIS' activities, exchange ideas, elect the EURORDIS Board of Directors (full members only) and understand the action plan for the following year.

 

 

 


June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

ECDR_2022.jpgNice, France

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 21/04/2021
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases