EURORDIS Events

In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

April 2021

CNA workshop

29 April 2021, online

Closed event for CNA members only. For more information, please contact Anja Helm.

May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

Online.

EURORDIS represents 962 rare disease patient organisations in 73 countries. EURORDIS Membership Meeting is an excellent opportunity for patient organisations to meet other patient advocates, learn from the best in the rare disease community, and get exposed to the latest developments in rare disease advocacy.

Learn more here.

June 2021

EURORDIS General Assembly

10 June 2021

Online. This is a closed event for EURORDIS members.

Each year, EURORDIS holds the General Assembly, which serves as an opportunity to get a full view of EURORDIS' activities, exchange ideas, elect the EURORDIS Board of Directors (full members only) and understand the action plan for the following year.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

Nice, France

The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact martina.bergna@eurordis.org for more information.