EURORDIS Events

 

In light of the COVID-19 pandemic, all EURORDIS events will be held online until May 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

November 2020

Council of National Alliances & Council of European Federations meeting

25 - 27 November 2020

Online. This is a closed meeting.

For more information, please email anja.helm@eurordis.org

February 2021

Black Pearl Awards 2021

24 February 2021

Online. Public registration coming soon!

For more information please see the Black Pearl Awards website or email martina.bergna@eurordis.org.

 

Rare Disease Week

22 - 25 February 2021

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.

For more information please see here, or email kostas.aligiannis@eurordis.org.

 

Rare 2030 plenary conference

23 February 2021

Online. Public registration coming soon!

For more information, please see the Rare2030 website or contact anna.kole@eurordis.org.  

 

Rare Disease Day

28 February 2021

For more information please see the Rare Disease Day website or contact erik.ruiz@eurordis.org.

March 2021

EURORDIS Round Table of Companies

Date to be confirmed.

Online. This is a closed event for members of ERTC.

For more information, please contact celine.schwob@eurordis.org.

May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

Online. This is a closed event for EURORDIS members.

June 2021

EURORDIS General Assembly

17 June 2021

Online. This is a closed event for EURORDIS members.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

Nice, France

Please contact martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 23/10/2020
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases