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Our Vision & Mission

Our vision: All persons living with a rare disease can live longer and better lives reaching full potential and well-being, included in a society that leaves no one behind

Our mission
is to work across borders and diseases to improve the lives of all persons living with a rare disease

EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.

By connecting patient, families and patient groups, as well as by bringing together all stakeholders and mobilising the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies and patient services.

Advocate

To advocate for policies and innovative solutions driven by the needs of people living with a rare disease.

Empower

To empower organisations and advocates representing the persons living with a rare disease across all rare diseases and European countries with the knowledge and skills they need to fight for better lives.

Partner

To catalyse networks to exchange experience, co-produce knowledge, deploy actions as well as cooperate with strategic partners and key stakeholders, including policy makers, supporting active and meaningful patient engagement and improving the lives of persons living with a rare disease.