Raquel Castro

  • Open Academy Director, Social Policy Director

Raquel Castro

Raquel Castro joined EURORDIS in 2012.

Currently based in Barcelona, Raquel is part of the Operations Team and is responsible for leading the EURORDIS Open Academy programme and EURORDIS' social policy activities.

Raquel coordinates the operations, strategic development and partnerships of the EURORDIS Open Academy and its training programmes.

After 6 years in charge of EURORDIS’ social projects, Raquel continues to disseminate everyday needs of people living with a rare disease and their carers and to share good practices, to support the integration of rare diseases into social services and to advance holistic and integrated care for rare diseases.

Raquel was previously in charge of EURORDIS’ activities within the EU-funded project INNOVCare and was involved in the European Joint Actions for Rare Diseases, supporting the elaboration and the implementation of the “Commission Expert Group on Rare Diseases Recommendations to Support the Incorporation of Rare Diseases into Social Services and Policies”.

Prior to joining EURORDIS, Raquel designed and coordinated the Portuguese Help Line for rare diseases, after having worked with development projects in Europe and in India.

Raquel holds a Bachelor of Arts in Communication as well as a post graduate degree in Project Management at the Lisbon School of Economics and Management.

A Portuguese national, Raquel is also fluent in English, French and Spanish.

Telephone: +34 932 20 32 24
Email: raquel.castro@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases