Fact Sheet and Case Studies

Consult our Fact Sheet and Case Studies to learn more about Adapted Housing Services and well established AHS across Europe.

Adapted Housing for Rare Diseases

Adapted Housing Services represent a particular type of service, often associated with multiple disabilities. Sometimes called ‘therapeutic apartments’, these services allow people living with rare diseases to develop and enjoy some level of autonomy by living within the comfort of their own home, alone or with peers, assisted by supportive staff, rather than being placed in an institution.
Download the Fact Sheet.

 

Case Study Presentations

2013

Prader Willi Group Homes GermanyPrader Willi Group Homes, Germany
Norbert Hödebeck-Stuntebeck, Diakonische Stiftung Wittekindshof, Germany
EURORDIS Membership Meeting 2013 Dubrovnik, Workshop 6: Specialised Social Services: need, policy, case studies

2012

Prader Willi Group Homes DenmarkPrader Willi Group Homes, Denmark
Susanne Blichfeldt, Pediatric Consultant, Danish Prader Willi Sydrome Association, Denmark
EUCERD Joint-Action Workshop on “Guiding Principles for Specialised Social Services”, 2012, Romania

Page created: 15/05/2013
Page last updated: 19/06/2013
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases