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Contact us

Find the answer to your question

Do you have a question about a specific EURORDIS activity or area of rare disease policy?
Please search and contact the relevant member of the EURORDIS team.

If you are still looking for an answer to your question you can email us at

    Media enquiries

    Please contact Julien Poulain, Communications Manager:

    Read our latest press releases and news and our position papers.

    Job vacancies

    Learn more about working at EURORDIS.

    Our offices


    EURORDIS-Rare Diseases Europe,
    Plateforme Maladies Rares,
    96, rue Didot,
    75014 Paris,
    Tel: +33 1 56 53 52 10


    EURORDIS-Rare Diseases Europe,
    Fondation Universitaire,
    Rue d’Egmont 11,
    1000 Brussels,
    Tel: +32 2 882 77 21


    EURORDIS-Rare Diseases Europe,
    Recinte Modernista Sant Pau,
    Pabellón de Santa Apolonia,
    Calle Sant Antoni Mª Claret 167,
    08025 Barcelona,

    To visit one of our offices


    Bus lines: 58, 62
    Metro Station: Plaisance or Porte de Vanves
    Tramway Station: Didot (T3 line)

    The EURORDIS office is located at the entrance of the former hospital compound of the Hôpital Broussais. The hospital has 2 entrances. The main gate at 96, rue Didot may be closed, in which case use the secondary entrance at 96 bis rue Didot. The office is located in “Bâtiment Maurice Raynaud” “Secteur Bleu” – Entrance 8 on the 1st floor.


    Metro Station: line 2, line 6: Porte de Namur
    Bus lines: 54, 71, 34, 64, 80 (Porte de Namur), 34, 64, 80, 95, 27 (Trône), 12, 21 (Luxembourg)


    Bus lines: H8, 19, 20, 45, 47, 92, 192
    Metro Station: line 5: Sant Pau | Dois de Maig

    EURORDIS cannot respond to questions concerning the medical aspects of a rare disease. EURORDIS does not employ qualified medical personnel or information specialists to give medical advice, diagnose illness, or offer referrals. We strongly recommend that you seek the advice of your health care provider with questions regarding medical care. If you need help finding a patient group for your disease, please search here or find sources of information on your disease here.

    The official language at EURORDIS is English. EURORDIS staff can also communicate in French, German, Italian, Spanish and Portuguese. For questions in other languages, please contact your local National Alliance.