22nd Workshop, Brussels: “Rare Diseases: Going Global”

22nd Workshop of the EURORDIS Round Table of Companies

“Rare Diseases: Going Global”

 

February 25th, 2015

Brussels, Belgium

22nd ERTC WorkshopIn the current climate, the development of innovative rare disease therapies is mostly global in nature due to the rarity of patients and experts, as well as to the fact that companies and investors have an increasingly international approach to the market. The meeting's objective was to discuss the opportunities that 'going international' presents, as well as to look at possible approaches for a long-term, structured, progressive internationalisation that involves patients, patient organisations, researchers, industry and competent authorities.

Participants: 88

Agenda 

Concept paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases