General Secretary of EURORDIS-Rare Diseases Europe
Geske Wehr was elected to the Board of Directors of EURORDIS in 2012 and currently serves as General Secretary.
Geske has three children. Her eldest son suffers from an autosomal recessive congenital Ichthyosis.
Geske has been involved in the German patient organisation Selbshilfe Ichtyose e.V. since 1997. Since 2000 she has co-organised their annual meetings and she was part of their Board of Directors from 2001 until 2006. Her current involvement in Selbshilfe Ichtyhyosis consists of supporting members in asserting their claims to the authorities and health insurances.
In 2004, Geske started working towards founding a European Network of Ichthyosis (eni), which was legalized in 2010, and for which she currently serves as Chief Executive on a voluntary basis. In addition, she has also served as a member of the Board of Directors of ACHSE e.V., the German Alliance for Rare Diseases for several years.
Geske is a member of the Council of European Federations.