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EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 1000 rare disease patient organisations in 74 countries. EURORDIS works to build a strong pan-European community of patient organisations and people living with rare diseases

Download the list of EURORDIS Member Associations.

EURORDIS Members by country

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Contact EURORDIS about our members

Anja Helm,
Senior Manager of Relations with Patient Organisations

Anja Helm