About us
Board of Directors
Governance documents
Board of Officers
Avril Daly
President
avril.daly@retina-international.org Read more
avril.daly@retina-international.org Read more
Dorica Dan
Vice-President
dorica.dan@eurordis.org Read more
dorica.dan@eurordis.org Read more
Maria Montefusco
Vice-President
maria.montefusco@eurordis.org Read more
maria.montefusco@eurordis.org Read more
Geske Wehr
General Secretary
geske.wehr@eurordis.org Read more
geske.wehr@eurordis.org Read more
Simona Bellagambi
Deputy General Secretary
bellagambi.estero@uniamo.org Read more
bellagambi.estero@uniamo.org Read more
Alain Cornet
Treasurer
alain.cornet@eurordis.org Read more
alain.cornet@eurordis.org Read more
Directors
Terkel Andersen
Immediate Past President
terkel.andersen@eurordis.org Read more
terkel.andersen@eurordis.org Read more
Anna Arellanesová
Director
arellanesova@vzacna-onemocneni.cz Read more
arellanesova@vzacna-onemocneni.cz Read more
Elizabeth Vroom
Director
elizabeth.vroom@worldduchenne.org Read more
elizabeth.vroom@worldduchenne.org Read more
Birthe Byskov Holm
Director
bbh@sjaeldnediagnoser.dk Read more
bbh@sjaeldnediagnoser.dk Read more
Alexandre Méjat
Director
amejat@afm-telethon.fr Read more
amejat@afm-telethon.fr Read more
Rebecca Tvedt Skarberg
Director
rebecca.tvedt.skarberg@oife.org Read more
rebecca.tvedt.skarberg@oife.org Read more
Kirsten Johnson
Director
kirsten@fragilex.org.uk Read more
kirsten@fragilex.org.uk Read more