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We are delighted you are interested in joining the EURORDIS team.

We boast a very international and highly skilled team with our members coming from 15 countries and speaking 16 languages. We work across three offices in Paris, Brussels and Barcelona.

If you would like to join EURORDIS and contribute to our mission, please keep an eye on our current vacancies section below.

All vacancies are advertised on this page and on our LinkedIn page.

All-staff seminar 2022
2 Survey Project Managers

Under the supervision of the Rare Barometer Senior Manager, the research executives will manage survey projects including the design, dissemination and analysis of international surveys gathering the experience and perspective of rare disease patients.

Download the job description (PDF, 255 Ko)

Location: EURORDIS Paris preferred but Brussels/Barcelona/Working remotely can be envisaged

If you are interested in applying for this position, please send your CV and cover letter in English to jessie.dubief@eurordis.org before 2 September 2022.

 

Research assistant

We are looking for a research assistant to help our research team analyse an international quantitative survey on the journey to diagnosis for rare disease patients and their families. This survey will raise awareness on challenges experienced by people living with a rare disease when seeking a diagnosis and highlight the obstacles and facilitators to obtaining a diagnosis to bring about change for people living with a rare disease around the world.

Download the job description (PDF, 256 Ko)

Contract type: 3 months temporary contract

Location: EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to jessie.dubief@eurordis.org before 15 August 2022.

 

Web Technology Manager

EURORDIS multi‐language web communications are at the centre of EURORDIS’ communications. This position is the main executor of all EURORDIS websites, digital newsletters, video and audio/visual content.

Download the job description (PDF, 465 Ko)

Location:EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org as soon as possible.

 

Patient Engagement & Training Manager

We are looking for a patient engagement manager with a passion for multi-stakeholder working environment and people & patient empowerment.

Download the job description (PDF, 105 Ko)

Location:EURORDIS Barcelona (remote work could be considered)

If you are interested in applying for this position, please send your CV and cover letter in English to virginie.hivert@eurordis.org before 15 June 2022.

 

Open Academy training intern

EURORDIS-Rare Diseases Europe is recruiting an intern for the period of 13 March 2023 – 11 August 2023 to work within the Open Academy & Events team at the Barcelona office (only interns already based in Spain or holding an EU visa or work permit will be considered) or Paris office.

Download the job description (PDF, 116 Ko)

Location: EURORDIS Paris or EURORDIS Barcelona

If you are interested in applying for this position, please send your CV and cover letter in English to anne.lheveder@eurordis.org before 16 September 2022.

 

Patient Engagement Manager in HTA

The Patient Engagement Manager in HTA (PEM-HTA) organises the participation (awareness, training, mentoring) of people living with a rare disease and their representatives in the European Cooperation on HTA, including its technical/scientific and political/strategic aspects, and in national HTA procedures. In addition, the position aims at participating in any research activity in the HTA field where EURORDIS is invited to take a role.

Download the job description (PDF, 115 Ko)

Location: EURORDIS Barcelona or EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to francois.houyez@eurordis.org before 15 July 2022.

 

Operations Junior Manager

The Operations Junior Manager (OJM) plays a key role, partnering with the Chief Operating Officer and wider leadership team, to enable effective transversal working across the operations team as well as with Finance, HR, and Advocacy.

Download the job description (PDF, 119 Ko)

Location: EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to drsm@eurordis.org before 15 August 2022.

 

Office Assistant

The Office Assistant (OA) is a multi-skilled assistant focused on secretariat and logistics.

Download the job description (PDF, 104 Ko)

Location: EURORDIS Paris

If you are interested in applying for this position, please send your CV and cover letter in English to annie.rahajarizafy@eurordis.org before 16 September 2022.

 

EU Public Affairs Senior Manager

The Public Affairs (Senior) Manager supports the advocacy activities of EURORDIS across relevant policy areas and develops advocacy outputs for EURORDIS, members and the relevant networks of stakeholders EURORDIS interacts with.

Download the job description (PDF, 106 Ko)

Location: EURORDIS Brussels

If you are interested in applying for this position, please send your CV and cover letter in English to pam-eu@eurordis.org before 23 September 2022.

Questions regarding recruitment at EURORDIS?

Susan Foster, HR Support & Budget Manager