We regularly publish news articles and press releases on the latest developments in rare disease policy and EURORDIS activities. Search for the latest news from EURORDIS below. We encourage you to sign up for our monthly eNews to stay up to date with what is happening in the rare disease field both in Europe and globally. Receive updates direct to your inbox and follow us on Twitter, Facebook, LinkedIn and Instagram!
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NewsEURORDIS releases Q&A to help patients advocate for their right to cross border healthcareEURORDIS has prepared a Questions & Answers document to help you understand the EU legislation on cross border healthcare and...Date: June 19, 2012
NewsEuropean Conference on Rare Diseases and Orphan Products 2012 BrusselsThe 6th European Conference on Rare Diseases and Orphan Products was a resounding success gathering close to 700 people on...Date: June 13, 2012
Award to EURORDIS-Rare Diseases Europe for driving a European Action Plan on rare diseases
Date: March 16, 2023More information
EURORDIS and partners launch major project to empower patient involvement in Health Technology Assessments
Date: March 7, 2023More information