We regularly publish news articles and press releases on the latest developments in rare disease policy and EURORDIS activities. Search for the latest news from EURORDIS below. We encourage you to sign up for our monthly eNews to stay up to date with what is happening in the rare disease field both in Europe and globally. Receive updates direct to your inbox and follow us on Twitter, Facebook, LinkedIn and Instagram!
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The global rare disease community calls on United Nations Member States to turn Universal Health Coverage into a reality for people living with rare diseases
Date: September 21, 2023More information
Yann Le Cam announces departure as Chief Executive Officer of EURORDIS-Rare Diseases Europe
Date: September 13, 2023More information