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Eurordis - Rare Disease Europe

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Press release

Press release

Award to EURORDIS-Rare Diseases Europe for driving a European Action Plan on rare diseases

Date: March 16, 2023

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EURORDIS and partners launch major project to empower patient involvement in Health Technology Assessments

Date: March 7, 2023

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EURORDIS expresses its support for an ECHR case involving cross-border healthcare for a child with a rare disease

Date: February 28, 2023

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Press release

MEPs call on Commission President to deliver overdue strategy on rare diseases

Date: February 27, 2023

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EURORDIS honours heroes of European rare disease community at annual Black Pearl Awards

Date: February 21, 2023

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EURORDIS-Rare Diseases Europe partners with EveryLife Foundation to support Brussels Rare Disease Week 2023

Date: January 23, 2023

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Pro Rare Austria and Salzburg University of Education collaboration becomes a cornerstone of the global 2023 Rare Disease Day campaign

Date: January 13, 2023

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21 Member States endorse Czech EU Presidency’s Call to Action on rare diseases at EPSCO Council Meeting

Date: December 9, 2022

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‘Rare Disease Moonshot’ – Scaling up public-private partnerships to accelerate research into world’s rarest diseases

Date: December 7, 2022

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EURORDIS-Rare Diseases Europe elects new Board of Officers

Date: November 25, 2022

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EURORDIS-Rare Diseases Europe responds to Czech Presidency Call to Action on rare diseases calling for a European Action Plan for Rare Diseases

Date: October 25, 2022

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EURORDIS Chief Executive Officer addresses Health Ministers at WHO to improve access to medicines for rare diseases

Date: September 13, 2022

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