Eurordis - Rare Disease Europe

Handbook:

How to create a European federation

Presentations:

Survival kit for small patient organisations (EMM Budapest):

• Patient Organisation self-diagnosis
• Is it time to start up again?
• Training volunteers
• People raising
• Hiring staff
• Communication: Creating a positive image and impact
• Fundraising strategies

CEF informal meetings

• Federation management tips
• Case study OIFE
• Case study HHT Europe

Volunteers

• EURORDIS How to Webinars – People raising: The underestimated art of finding, cultivating and motivating Volunteers
• In kind (volunteer) contributions in financial reports of patient organisations
• In kind (volunteer) contributions in financial reports of patient organisations Q&A
• International Gaucher Alliance volunteer Programme

EURORDIS Open Academy courses

• Establishing an international cooperation

Tips for Registration in an EU country

• EU registration options for NGOs – A guide to establishing NGOs in Europe