ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Alexion Pharmaceuticals Inc. CLS Behring Actelion Website Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
• Emerald Members
Alnylam Akari Amicus Therapeutics ArgenX
Audentes Biocryst Biogen Biomarin
Bluebird Bio Blueprint Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Daiichi-Sankyo Editas Medecine
Gilead Hansa Medical Horizon therapeutics insmed
Illumina Ionis ipsen KYOWA KIRIN
LEO PHARMA MSD Europe NovoNordisk Orchard Therapeutics
Parexel PTC Therapeutics Santen SAREPTA Therapeutics


Swedish Orphan International

UCB Ultragenyx
Vertex Vifor Fresenius Medical Care    
• Sapphire Members
Aeglea Agios Alira Bayer Schering Pharma AG
Bionical EMAS BridgeBio Camurus Clinigen Group
ENZYVANT Généthon Généthon GRIFOLS
HealX insmed Lysogene-Q Jazz
Lundbeck Lysogene-Q Mereo Biopharma Neurogene
Open App Ovid Passage Bio ProQR
RegenXBio Sangamo Spark Spark


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Page created: 19/08/2009
Page last updated: 23/05/2022
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases