ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Actelion Website Celgene CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Shire Pharmaceuticals, Inc
• Emerald Members
Ablinx Achillion Akcea Alexion Pharmaceuticals Inc.


Akari Audentes Biogen
Biomarin Bluebird Bio Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics GlaxoSmithKline Horizon Pharma USA
Illumina ipsen KYOWA KIRIN MSD Europe  
Orphan Europe PTC Therapeutics SAREPTA Therapeutics Swedish Orphan International
INC Research/inventive Health Ultragenyx Vertex




• Sapphire Members
Aegerion Agios Amicus Therapeutics Avexis
Bayer Schering Pharma AG Biopontis Alliance BridgeBio Clinigen Group  
Cydan Dipharma DLA Piper Dompé Group
EDITAS ENZYVANT Généthon Généthon
GRIFOLS insmed insmed
Leadiant biosciences Lysogene-Q mapi Mereobiopharma    
Mark Krueger & Associates  Inc.  op2drugs Ovid
PharmaMar RegenXBio Sangamo Santhera
Spark UCB Vifor Fresenius Medical Care

* In-Kind member acting as liaison with NORD Corporate Council in the US and in recognition of support of the ERTC workshop dinners

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Page created: 19/08/2009
Page last updated: 04/12/2018
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