Job openings

EURORDIS - Rare Diseases Europe is currently recruiting for the following positions:

Barcelona

Patient Engagement Manager - ERN & Healthcare/ European Patient Advocacy Groups

EURORDIS is recruiting a Patient Engagement Manager in the area of ERNs, Healthcare and ePAGs. The person occupying this position works within the ERN & Healthcare team (growing from 3 FTE to 4 FTE with this new position), in close collaboration with the EURORDIS communications team. The main responsibilities concern communication and knowledge management to help ePAG patient advocates deliver on their mission.

EURORDIS is looking for candidates of English mother tongue or equivalent or with several years of experience in an English‐speaking environment and excellent English writing skills. The ideal candidate would also have several years of international personal or professional experience, preferably in the non‐profit, humanitarian or health sectors, and some experience in international project management.

Download the job description (PDF, 90 Ko)

If you are interested in applying for this position, please send your cover letter and CV in English to lisa.zmihi@eurordis.org on or before 26 October 2018.

Paris

Chief Operating Officer

EURORDIS is recruiting a Chief  Operating  Officer. The person occupying this position is responsible for the oversight, support, coordination, development and scale–up of EURORDIS Operations, Programmes and Projects.

EURORDIS is looking for candidates with at least 5 years of senior leadership experience of financial and staff responsibilities including management of seasoned staff in different fields, and a track record of project management.

Download the job description (PDF, 90 Ko)

If you are interested in applying for this position, please send your cover letter and CV in English to susan.foster@eurordis.org on or before 31 October 2018.

 

Page created: 01/09/2011
Page last updated: 08/10/2018
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases