Job openings

EURORDIS - Rare Diseases Europe is currently recruiting for the following positions:


Public Affairs Manager - EU & National Integrated Advocacy

EURORDIS-Rare Diseases Europe is looking for a Public Affairs Manager - EU & National Integrated Advocacy to work within the Public Affairs team in our Brussels office. The person occupying this position is responsible for coordinating and empowering advocacy and outreach capabilities of national rare disease patient groups, notably National Alliances.

EURORDIS is looking for candidates with at least 7 years' experience in EU public affairs and advocacy. The ideal candidate would also have strong motivation to work for an NGO and be flexible to travel.


Download the job description (PDF, 120 Kb)

If you are interested in applying for this position, please send your cover letter and CV in English to before 15 September 2019.


Page created: 01/09/2011
Page last updated: 16/08/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases