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January 2023

How to raise awareness among healthcare providers?

With Rare Disease Day fast approaching, we invite you to attend our webinar on Tuesday 31st January 2023 at 5:30 PM (CET) discussing ‘How to raise awareness among healthcare providers’. For this webinar, we will be joined by three speakers from our national alliance partners with experience on the subject:

  • Louise Fish – President of Genetic Alliance UK and Rare Disease UK
  • Dorica Dan – Chair of the Romanian National Alliance for Rare Diseases and Cancers
  • Helen Malherbe – Research Director – Rare Diseases South Africa NPC

A 10 – 15 minute presentation will be made by each speaker, outlining their actions as national alliances, as well as their achievements, insights and recommendations on this type of event if it were to be implemented in other countries.

We will also be joined by one medical expert:
Annick Rothschild – MD Paediatrician Medical Geneticist – Sheba Tel HaShomer City of Health in Israel

A 10 – 15 minute presentation will be made by each expert, outlining how they manage to raise awareness among their healthcare provider colleagues, as well as how their actions have an impact on their peers.

This webinar will be recorded and there will be a reply on our YouTube channel where subtitles will be translated into 44 languages by automatic translation.