Eurordis - Rare Disease Europe

New Rare Barometer survey on Newborn Screening

In this webinar, Jessie Dubief will introduce the new Rare Barometer survey on Newborn screening. What type of questions will be asked, and how will the data be analysed? These are some of the questions that will be answered during the webinar. We will also look at the different resources available for you to increase the participation in your country or disease area, and how you can use the results in your own advocacy efforts.

Time and date: 2pm CET on Wednesday 31 May 2023.