Terkel Andersen

  • President

Terkel Andersen

 

President of the Board, EURORDIS-Rare Diseases Europe

email: terkel.andersen@eurordis.org

Terkel Andersen was elected President of EURORDIS-Rare Diseases Europe in May 2003 and has been a member of the EURORDIS Board of Directors since 1997, when the organisation was founded.

A person with haemophilia himself, Terkel has broad experience in disability and health issues becoming involved in the rare disease field in 1983 when he joined a Nordic project on the mapping of problems related to rare diseases. Terkel served as president of the Danish Haemophilia Society 1985-2017. He was one of the founders of the Danish Alliance of Rare Disorders in 1986 and worked as the first Executive Director of the Centre for Rare Diseases and Disabilities of the Ministry of Social Affairs in Denmark from 1990 to 2001.  From 1992 to 2002, he served on the executive board of the World Federation of Hemophilia; and from 1993 to 1999, he was chairman of the European Haemophilia Consortium.

In his professional capacity Terkel worked with the Danish National Council for Volunteering until October 2018.

Terkel represents EURORDIS at International Conferences throughout Europe and beyond.

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases