Survey of the delay in diagnosis for 8 rare diseases in Europe (‘EurordisCare2’)

A series of fact sheets designed to give an overview of the issues affecting people living with a rare disease and to inform about specific areas of interest. The fact sheets introduce the work being done by Eurordis in the field of rare diseases in Europe and give sources of information. These A5 2-page leaflets are available in print or pdf format.

 

 

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Languages: English

 

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases